Wednesday, June 9, 2010

Little Voices of Destruction

Lately there have been many ups and downs in my life.  They are more internal that external.  Externally, there have been far more ups than downs, so I should be good... but I'm not.  Earlier this week I had three days of high.  Seriously, nothing could knock me down!  Then I got knocked down.  The high, I wonder, maybe was caused by lots of carb consumption over the weekend... pasta, ice cream cookie sandwiches with chocolate chip sprinkles, sugary drinks, etc.  All I know is that it was nice to feel invincible for a few days!

Then we went to a birthday party yesterday and I chased Aidan around for about 90% of the party.  And I felt so out of my comfort zone that I didn't really talk much with anyone anyway.  Jonah would disappear and I would worry that he would be bitten by a rattlesnake and he would be some place where I couldn't find him until it was too late.  And while I was worrying about where Jonah was, Aidan would run off and I would have to find him and run after him because, as a baby should be, he usually runs the other way and laughs when I call his name.  They both disappeared a number of times, and the park where the party was located was quite remote and "wild," lots of places to disappear.  I only knew the mother of the birthday boy.  I had never met her son or her husband or her friends or her friends' kids.  And I had to carry my purse, my camera, a water bottle, Aidan's apple and nectarine wedges all over as I chased the boys.  I was a bit frayed by the end of the party and glad to come home.

And as I was leaving, I was all too aware how withdrawn I had been at the party.  I became very critical of myself, thinking of all the things I should have done differently.  I was embarrassed that complete strangers were doing things with Jonah when I felt like I should have been the one helping him.  I was embarrassed that I wasn't up to meeting people and avoided my friend's husband until he was about to leave and he came over and introduced himself, clearly completely unaware of who I was or why I was there.  I spend so much time at home away from adults that you would think I would be so stoked to spend time with other adults!  But I just wanted to run... or hobble, since my knee won't really allow running.

So I have been having these thoughts going through my head lately... thoughts that I am at a critical point in my life.  I feel like the way I handle what is happening right now could really determine where my life heads for the indefinite future.  I keep having thoughts that I am going to completely fall apart and get completely out of shape again and gain lots of weight.  That is my fear, that I am going to end up like these unhappy, obese people I have been watching on The Biggest Loser because my life seems to be getting so out-of-control and I don't believe I can stop it.  I fear that I am failing at everything I am trying to work on right now because I feel so overwhelmed and scattered, like everything in my life is an emergency.  It feels like I have lost my strength, like I have lost my chutzpah.  I like going to the gym and think about going, but I don't go.  I like healthy food, but I am choosing crap instead.  I know there are things that I need to do, but I watch tv and play games on facebook to numb-out instead of getting things accomplished.  I wonder what happened to the spirit I used to have.  I wonder where my inner strength has gone.  WHERE IS MY SELF-CONTROL????  I look in the mirror and I know that I am hardly even close to being obese since my weight is in the 120s, but I have been yo-yo-ing up and down for over a year.  I can't keep it together long enough to maintain my weight or to continue losing weight to get to my goal.  I am wearing clothes that I wore during my pregnancy, people!!  And they are snug.  But it's more about what I am consuming than it is about the weight.  I am killing myself with the crap I am eating.  I don't eat healthy foods like I used to and Aidan eats far unhealthier foods than Jonah did at his age because I don't have the motivation to cook healthy meals.  I usually just go out and buy fast food.  My almost two year old's favorite meal is a double cheeseburger plain and apple fries.  He would prefer regular fries, but I try to at least get him the apples or other fruit rather than fries.  And he likes nachos.  And quesadillas.  And mac and cheese.  Stuff that has very little nutrition to it.  Then I criticize myself for not saving money by cooking at home.

I keep telling myself that I can't do anything right in so many words, and I think I am starting to believe it.  I need to stop that.  I know I do.  It's just really hard with my life going in so many different directions... homeschooling Jonah, taking classes to learn how to help Jonah, Raul working two jobs, Aidan growing up and challenging boundaries (which he should, b/c he is a normal, healthy child), dealing with this PPO insurance and getting bills for visits I forgot about and being double-charged (and not realizing it until after I paid BOTH bills) b/c the doctor's office billed under both Jonah's and Raul's names for the same visit b/c they are both named Raul, (oh-yeah) all the doctors' visits for my knee and for Jonah, worrying about Jonah having to go under general anesthesia TWICE this summer for an MRI and to get his cavities filled (b/c of his extreme anxiety), and just living every single day.  It's just so hard.  You don't know how hard it is to live with a child with Asperger's/high functioning autism unless you go through it.  You cannot even begin to fathom what it's like.  The work never ends.  There is no going home at the end of the day to relax from this job.  It's 24/7.

So please excuse me while I have my little nervous breakdown before I can move on.

5 comments:

  1. i don't know if anyone else has suggested this before, but is there a "parents of autistic children" support group you could get involved with?

    of course you don't want all of his interactions to only be with other kids with aspergers... but it might be really helpful for you to spend time with people who truly understand what you're going through, and who might have some practical coping skills suggestions for you.

    just a thought.


    as for all the other stuff... you know that beating yourself up for all the things you're not doing, or not doing right, right? you don't need to do that. think of all the things you are doing right... you're trying to make positive changes in Jonah's life, you're trying to make sure that your family gets the care it needs to stay healthy... you just also need to make sure you get the care you need to stay healthy and sane.

    be good to yourself, you deserve it.

    ReplyDelete
  2. i agree with megan honey, you need to be good to yourself - the stress of what you're doing would do most people in. so, be forgiving of yourself and know that you are a good mother. ask for help as you need it and don't be afraid of doing that.

    ReplyDelete
  3. I have never really been into support groups, truthfully. I was supposed to go to one a couple of weeks ago... signed up for it and totally forgot after I got the cortisone injection in my knee b/c I was in pain. And it's only once a month. :( Often, I really just want time to NOT talk or think about Asperger's b/c it is such a huge part of my life.

    See... I can't even decide how I really feel about support groups. I go back and forth with virtually everything b/c the thought of some of these things... they sometimes seem like just one more thing I have to deal with rather than something to help.

    I have a few friends with children with Asperger's, too, but our lives are all so busy and complicated that we rarely talk to each other. It's part of this world. And often time flies by so quickly for us that we don't even realize how many months have passed until we are getting together for a birthday party or just sharing a complete meltdown. It's the nature of the beast.

    I really appreciate the thoughts and suggestions. I feel better now that I got that all out of my system. I think sometimes I just need to admit out loud - or online, as it were :) - how I am feeling to stop feeling that way. It's like calling myself out. lol!

    ReplyDelete
  4. C,

    I had to do the same thing after the divorce. You guys read all about it! But allowing yourself to just admit you need help, or need to vent, or even need a cheeseburger can free you. It is the silent shackles that are allowed to win. So please keep sharing, purging out that anger and pain, and it WILL get better. We will always be here to listen.

    J

    ReplyDelete
  5. OH MY GOD DID I WANT A CHEESEBURGER, STEAK FRIES, AND A MILK SHAKE YESTERDAY!!!! Boy, do I feel free now! You are so right! I just need to get it out.

    I am taking some of the stress off as we speak. Today I cancelled Jonah's MRI because we don't really see how it will benefit any of us. Also, I got a letter saying that Aidan will no longer receive free speech therapy from the state, that our insurance will have to pay for it... so we won't be going to speech anymore. Both of my boys are doing great and the MRI and speech therapy are not necessary. Aidan is talking more than Jonah now and finding out if Jonah has scarring on his brain won't do anything to help him. So that is less I have to worry about.

    Now I am trying to schedule fun things. Later this month I will take Jonah and Aidan to a "sensory smart" showing of Toy Story 3. (They keep the lights on and the sound levels low and the kids can move and dance and TALK without getting yelled at by assholes who forgot their hear aid batteries.)

    And tonight is the last night of my class about collaborative problem solving! Whoo-hoo!!!

    I have never been such a bad patient (with my ortho doc & my pt), bad student, bad hostess, bad whatever at any other point in my life. I am like 5 chapters behind for my class. I stopped going to pt b/c I wasn't doing any of my "homework." My place was a mess when my mom, sister, and BIL stayed with us. I had boxes and crap piled on the counter in my kitchen. There was folded and unfolded laundry, mail, dishes, a colander, ink pens, markers, paper clips, garbage, plastic Target bags with purchases still inside them, etc. Disaster! And I never had time to steam clean the carpets or even spot clean them, so there were these brownish spots all over the place... It was repulsive, but I survived and so did they.

    I think it was good for me to experience being so out-of-control and being so "bad." I have always tried to live up to others' expectations, and finally, others' expectations don't matter as much as my own expectations. My life has finally reached a point where I have to decide what is necessary and what isn't b/c I don't want to lose my mind. My sanity matters more to me than making my doc or my pt or my instructor happy, you know? But it sure is cool when my little monkey Aidan is hanging on my back squealing and laughing (like he is right now) b/c HE is happy.

    It WILL get better. I know... Thanks, all of you!! :-)

    ReplyDelete